Top Tweets for #PipeLineDeal
@MattHancock @PHE_uk Is this a sick joke?! I’ve spent nearly 4 years fighting for #Orkambi #symveki and a #pipelinedeal between you and @VertexPharma!
You’ve got a few weeks off work now @MattHancock. Use the time productivity, meet #jeffleiden, do the deal and save lives.
@nicolablackwood @DHSCgovuk @UK_Life_Science There is no benefit to the UK if we finance research into drugs that @NICE is incapable of evaluating appropriately. Please work with @MattHancock to ensure there is a via route to market for new drugs ..#OrkambiNow #pipelinedeal
Graphic shows lives lost who were eligible for Orkambi there hv been more lost who were eligible for rest of #pipelinedeal we need to #stoptheclock 400 hv their drug #kalydeko & are living their lives well because the @NHSEngland has paid for it feels like #genediscrimination
Let’s hope @MattHancock is open to agreeing to a fair deal for #orkambi with Jeffrey Leiden from @VertexPharma today. People are dying while u faff about Matt, enough is enough, ensure #orkambi is made available within weeks, CF lives matter #orkambi #mymiracle #pipelinedeal
.#OrkambiNiw #symkeviNow #PipeLineDeal #ExpressCrusade4CF @Daily_Express @ChrisMRiches @theresa_may ‘Speedy Resolution ‘ WHEN ?
Please sign....I’m 5.5 years on Orkambi & soon to be 43, the last 5.5 years have been incredible everyone in UK deserves the chance to try Orkambi #mymiracle #orkambi
@MattHancock @4IR_APPG PLEASE Could you explain to me why you hold a high position in our Government's healthcare yet you would rather speak at a technology conference then attend a Parliamentary Debate to discuss #PipelineDeal CF drugs we are denied when OUR children r literally dying????
@CommonsHealth @VertexPharma @NHSEngland @NICEcomms I really hope we can find a solution soon and get these life changing #PrecisionMeds4CF to the patients that need them. #OrkambiNow #PipelineDeal
Thank you so much @heidiallen75 for asking your Oral PQ re CF and Orkambi yesterday. I was protesting outside when you were at the CF Trust Parliamentary Event meeting @gayle_pledger. Go Heidi! #orkambinow #pipelinedeal
Your #NHS strategy is "prevention not cure" isn't it, @MattHancock? So let's tackle the cause of cystic fibrosis rather than just treating the symptoms. #OrkambiNow #pipelinedeal
https://t.co/pqq8CkO1z4
💔🌹💔🌹💔 3 years old and no idea of the life she has ahead of her with CF. How different it could be if you reduced the cost of your life saving drugs for our loved ones. @VertexPharma #pipelinedeal
Once again we’re at a Standstill 😡 vertex are still not providing the welsh Government with the evidence they need to pursue with #orkambinow and #pipelinedeal. LIFES NOT PROFIT!!!!!!
Our loved ones life’s are in your hands,
@VertexPharma
@DiXGovernment +don’t break my heart What?Today has been & gone 🤷♀️I have a sick child already so sick she is on compassionate use #OrkambiNow So we are so desperate for the @VertexPharma #pipelinedeal She needs the triples as soon as they’re licensed so I hope ur right #PrecisionMeds4CF
@BrineMinister @SupershoesUK ..#cysticFibrosis community still waiting Not over the line yet Hope you’ve still got your hawk eyes on negotiations New @VertexPharma Triples are game changers Need a #pipelinedeal now @emmagadie2009 @_MissMoo_ @strawfie @myCFHero @fight4orkambi @OrkambN https://t.co/YO330AwFgz
@myCFHero @MargCassalina @mamanorby ..#whataboutus some of really need this now! @VertexPharma get the deal done ✅ @cftrust @DavidRamCFT @boysenmh @NHSPeterH @NHSEnglandNMD @MattHancock @BrineMP @jamesosh #nomoreCFangels #OrkambiNow #PrecisionMeds4CF #stoptheclock #irreversibleLungDamage #multiresistantINFECTIONS
WOW WOW WOW @MattHancock @NHSPeterH @NHSEnglandNMD @boysenmh @BrineMP These @VertexPharma new #CysticFibrosis drugs are game changers We need these #PrecisionMeds4CF #pipelinedeal meds NOW. Please do the deal. My daughter needs a chance to live 😢 https://t.co/o9egmhV9v5
@WeNeedOrkambi @nhsCFwarriormum
I’ll fight till the #pipelinedeal is done 👊🏻💛#stoptheclock
#ukneedsorkambipipeline #saveCFlives
#precisionmeds4CF
#OrkambiNow
@FionaMary11 @DiXGovernment None of us have abused him. We are just confused how he seems to know more than everyone else is prepared to say at this stage in the negotiations as anxiety is high. This is a critical time. Let’s hope we all get the right outcome #OrkambiNow #pipelinedeal
#precisionmeds4CF
@RealFrenchWill @DiXGovernment ..isn’t @sarahwollaston looking into that with the health select committee as @DavidRamCFT of @cftrust already had talks but an overhaul of @NICEcomms will take time Still knowing this they were at the @VertexPharma meeting so 🤞🏻OrkambiNow & 🤞🏻#pipelinedeal are imminent Or not?
@RealFrenchWill @CFisNoParty50 @Natasha24462980 @DavidRamCFT @cftrust @MattHancock Absolutely This is good news 4CF I think, but hope it’s both #OrkambiNow & #pipelinedeal that they’re fighting for #stoptheclock
#ukneedsorkambipipeline #saveCFlives
#precisionmeds4CF #nomoreCFangels @VertexPharma @NHSPeterH @NHSEnglandNMD @jamesosh @NICEcomms @strawfie
@GreatStrides65 @fight4orkambi @hannahbegbie @tomedgehere @NHSEngland @DHSCgovuk @NICEcomms @NHSEnglandNMD Well I hope whoever is attending in their absence is able & willing to get #OrkambiNow & the #pipelinedeal done. #nomoreCFangels @MattHancock Can’t you intervene to ensure that the grownups behave like grownups as ppl with #CysticFibrosis don’t have the luxury of time to wait
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