MEAction Colorado

Colorado advocates for people with ME, caregivers and allies. Follow us on Facebook and Instagram: #MEActionCO

[MEAction Colorado @meactionco]

#FindJenBrea

[#MEAction Network @MEActNet]

We have an emergency in our community. Our founder, Jennifer Brea, has been missing for over 48 hours and was last seen in Miami, Florida. We are concerned for Jen’s well-being as she is in the midst of a mental health crisis. We are asking for your help to spread the word.

[MEAction Colorado @meactionco]

Thanks to everyone at #MEactionCO who helped make this happen: a FTE to study Long COIVD & post-viral illnesses in CO!

[Alison Sbrana @AlisonSbrana]

Super excited to hear about new role created in Colorado state gov't specifically focused on post-viral illness policy. Planning for infection-initiated chronic illnesses should be part of public health & pandemic plans. (Applications open until June 9!)

https://t.co/tqpbsPEQBo

[Rivka @Rivkatweets]

Video (4 min): My personal story about getting a virus decades ago & never getting better.

Its also the story of the #MillionsMissing —sick disabled ppl dismissed by gov’ts, doctors & media.

We are the strongest, most resilient ppl u will ever meet!

@MEActNet @NIHDirector

[Sissel Sunde 🇳🇴 @Sissel777]

Today we had a great meeting at the Norwegian Parliament, in our #MillionsMissing T-shirts! ❤️

Happy World ME Day! 💙

#WillYouLearnFromME

@MEActNet @WorldMEAlliance @MEforeningen

[Dr Katharine Seton @Katharine_seton]

Today I have submitted my #MECFS research PhD thesis, ironically on #WorldMEDay

Thank you @Invest_in_ME for funding my PhD

[Giada Da Ros @Giada_Da_Ros]

Today is ME/CFS awareness day. This is my story.

@MEActNet

#millionsmissing #mecfs #cfsme #12may #meawarenessday #meworldday #MECFSawarenessday

[Tom Kindlon @TomKindlon]

May 12 is International Myalgic Encephalomyelitis (ME) Day (and May is ME Awareness Month)

You can help by retweeting and/or liking this image.

Day #12

#MyalgicE #MyalgicEncephalomyelitis #May12 #May12th #MEAwarenessDay #MillionsMissing

[#MEAction Network @MEActNet]

#MillionsMissing May 2022 begins! Share your stories. Tag @meactnet & use the hashtag #MillionsMissing.

Everything you need: https://t.co/SEg0pHRT4F

#pwME #MyalgicEncephalomyelitis #MECFS #LongCovid #HealthEquity #Activism #DisabilityJustice #ChronicIllness

[#MEAction Network @MEActNet]

We created a poster for #WorldMEDay & #MillionsMissing. It was easy and quick using the tool from the @WorldMEAlliance (#MEAction is part of this alliance.)

We can come together to make a better world! #LearnFromME

[MEAction Colorado @meactionco]

I stand with @PlzSolveCFS and @LongCovidFam in supporting the #CAREforLongCOVID Act. @SenatorHick @SenatorBennet please support funding for Comprehensive Access to Resources and Education (CARE) for post-viral diseases, including #LongCovid and #MECFS. https://t.co/nVKrGVl2B8

[Billy Hanlon @bhanlon15]

When SARS-CoV-2 introduced itself to the world, the chronic illness community was prepared for a tidal wave of potential ramifications.

@PlzSolveCFS & Oved Amitay helped sound those concerning alarms.

Here's to hoping these wounds transform into wisdom. ⬇️⬇️

[Sonya @sonya_lala_]

Stellar analysis of #LongCOVID & its impact on jobs/ economy. I’ve been raising this for awhile so am glad to see it finally addressed in the media. Only thing I’d add is the likelihood that most of these people will b disabled the rest of their lives. See https://t.co/bMA8uB7mzQ

[Sonya @sonya_lala_]

Stellar reporting on #LongCOVID’s impact on jobs by @kkschwab w analysis by @kathrynsbach. Only thing I’d add is the likelihood that most of these people will b disabled the rest of their lives, given what we know about post-viral disease & #MEcfs. See https://t.co/PkmJMrRpgB…

[MEAction Colorado @meactionco]

I am saddened by the loss of an amazing hero.

[Open Medicine Foundation @OpenMedF]

Dear OMF Family: It is with great sadness that we inform you of the sudden passing of OMF's beloved Chief Medical Officer, Ronald G. Tompkins, MD, ScD. As we join together to mourn this devastating loss, we would like to reflect on his tremendous legacy: https://t.co/RECf700pOV

[MEAction Colorado @meactionco]

We stand with @C19LH_Advocacy in calling on
@POTUS & his Administration to address #LongCovid in the State of the Union, to develop & expand social supports, & to form a Long Covid Task Force. There is no time to waste. Bold action must be taken now.

[COVID-19 Longhauler Advocacy Project @C19LH_Advocacy]

1/18 Today, nearly two years into the COVID-19 Pandemic, we are calling on @POTUS, @Congressdotgov and the @WhiteHouse to immediately create Long Covid Assistance Programs and a Long Covid Task Force. #LongCOVIDActionNow #LongCOVID #DisabilityAwareness

https://t.co/b2uioU4XN7

[Karyn Bishof @K_Bishof]

It is time for @POTUS @WhiteHouse @congressdotgov to take #LongCovidActionNow and #CountLongCovid to create #LongCovidPolicy & restore #qualityoflife for millions of #Longhaulers & their families. We cannot go without assistance for years while waiting on research. #REALTIMEHELP

[MEAction Colorado @meactionco]

@LeaderHoyer @HouseBudgetDems @RepMaloney @OversightDems @AppropsGOP @GOPHELP @housebudgetdems @SVACDems @SVACGOP @NatResources @HouseVetAffairs @HouseAdm_Dems @SASCmajority @HSGAC @FSCDems @houseagdems @GOPoversight @WaysandMeansGOP @housecommerce

[COVID-19 Longhauler Advocacy Project @C19LH_Advocacy]

1/18 Today, nearly two years into the COVID-19 Pandemic, we are calling on @POTUS, @Congressdotgov and the @WhiteHouse to immediately create Long Covid Assistance Programs and a Long Covid Task Force. #LongCOVIDActionNow #LongCOVID #DisabilityAwareness

https://t.co/b2uioU4XN7

[MEAction Colorado @meactionco]

@SenSchumer @SenSanders @Congressdotgov @GOPLeader @BobbyScott @EdLaborCmte @RepDonBeyer @JECDems @LeaderMcConnell @PattyMurray @SpeakerPelosi @rosadelauro @AppropsDems @RepMaxineWaters @FSCDems @RepRichardNeal @WaysMeansCmte @SenSherrodBrown @SenatorLeahy

[COVID-19 Longhauler Advocacy Project @C19LH_Advocacy]

1/18 Today, nearly two years into the COVID-19 Pandemic, we are calling on @POTUS, @Congressdotgov and the @WhiteHouse to immediately create Long Covid Assistance Programs and a Long Covid Task Force. #LongCOVIDActionNow #LongCOVID #DisabilityAwareness

https://t.co/b2uioU4XN7

[MEAction Colorado @meactionco]

@ACFHHS @HHS_Spox @CDCGov @StateDept @HHS_IEA @NIH @SocialSecurity @ACLgov @Haffajee_r @CMSgov @DrWoodcockFDA @MinorityHealth @ONC_HealthIT @AHRQNews @ASPRGov @CivilRights @HHSGov @NatCounDis @DirOPSPAHO

[COVID-19 Longhauler Advocacy Project @C19LH_Advocacy]

1/18 Today, nearly two years into the COVID-19 Pandemic, we are calling on @POTUS, @Congressdotgov and the @WhiteHouse to immediately create Long Covid Assistance Programs and a Long Covid Task Force. #LongCOVIDActionNow #LongCOVID #DisabilityAwareness

https://t.co/b2uioU4XN7