Daniel Roy O'dur 🧢

EMPH|System strengthening|Policy Review| Researcher|Fundraising|Peking University| Sickle Cell Disease Advocate|Nominee Top 40 under 40 New Vision.

[Daniel Roy O'dur 🧢 @ddanielroy]

Uhuru Sickle Cell Run 2024 was a breeze!
Thank you everyone who participated.
@usmissionuganda @JaneRuth_Aceng @MinofHealthUG @cphluganda @UNOC_UG @stanbicug @kcbbankug @Voiceoflangofm @Comrade_Otoa @GlobalGenes @SpearMotors @linordmoudou @CarterCenter @Pontifex @AnitahAmong @ps_lukwago @MugenyiHenry_ @kyamageroandrew @SueNsibirwa @UABSickleCell @AnitaKomukama @DailyMonitor @GKKirumira @LUPHSAlirauni @LIRA_UNIVERSITY @UNGeneva @Rotengo2 @KennethOmona @TackleSickle

[Catherine Phil Sickle Cell Support Initiative @UgandaSickle]

Closing the Survival Gap: Equity in Sickle Cell Disease.
@@MinofHealthUG @DianaAtwine @olaro_charles @ASH_hematology @jcrc_official1 @CellRwenzori @UABSickleCell @OfSicklers @SickleCellUK @nextradio_ug @97fmRadiocity @RadioOneFM90 @977unityfm @Patricia_Aceng @LUPHSAlirauni @Towncollege @WordPressLira @EddyOlwa @LiraSqoop @kofihuganda @VioletLobelia @JCRCofficial @NicosamHealth @pridebankltd @BOU_Official @agrosupplyug @bayloruganda @pearlbank_ug @PepsiUganda @Toyota_UG @SpearMotors @JohnsHopkins @bmsnews @UNOAU @dgrotaryd9213 @RCKla7Hills @Emmanuel_Rotary @qcil_uganda2 @Microhaem @DailyMonitor @SueNsibirwa @ntvuganda @Waltermwesigye

[Catherine Phil Sickle Cell Support Initiative @UgandaSickle]

Congratulations, @ArioAlex83969 Uganda is proud of you. Africa is proud of you. The world is better because of your service.

On behalf of the Board, Management, Staff, Volunteers, and beneficiaries of the Catherine Phil Sickle Cell Support Initiative (CAPSCI), we extend our warmest and most heartfelt congratulations to our esteemed Board Chairperson, Dr. Alex Riolexus Ario, upon being named the inaugural recipient of the prestigious 7-1-7 Research Award at the Global Health Security Conference in Kuala Lumpur, Malaysia. This distinguished international recognition celebrates your outstanding contribution to strengthening the evidence base for epidemic preparedness and global health security. (7-1-7 Alliance)

This remarkable achievement is not only a personal milestone but also a source of immense pride for Uganda, Africa, and the global public health community. Through your visionary leadership, scientific excellence, and unwavering commitment to safeguarding populations from public health threats, you continue to demonstrate that African expertise can shape global solutions and influence international health policy. (7-1-7 Alliance)
As Chairperson of Catherine Phil Sickle Cell Support Initiative, your guidance, strategic insight, and commitment to strengthening health systems have been invaluable to our mission of improving the lives of individuals and families affected by sickle cell disease. Your achievement inspires our team to pursue excellence, innovation, and evidence-based approaches in addressing some of the most pressing health challenges facing our communities.

Today, we celebrate not only an exceptional scientist and public health leader but also a mentor, patriot, and champion of health equity whose work continues to save lives and strengthen institutions across Uganda and beyond.
We are honored to be associated with your leadership and proud to witness your contributions being recognized on the global stage. May this well-deserved accolade serve as a stepping stone to even greater accomplishments in your distinguished career.

Signed,
Daniel Roy Odur
Executive Director
Catherine Phil Sickle Cell Support Initiative

@MinofHealthUG @DianaAtwine @DailyMonitor @jcrc_official1 @SabrinaKitaka @UNIPH3 @Microhaem @qcil_uganda2 @NicosamHealth @MugenyiHenry_ @SickleInAfrica

[Daniel Roy O'dur 🧢 @ddanielroy]

@TackleSickle @Microhaem @MinofHealthUG @CAkwesigye @UgandaSickle Service to humanity

[Catherine Phil Sickle Cell Support Initiative @UgandaSickle]

Today, 31st. May.2026 we successfully conducted a Sickle Cell Disease outreach and screening program at Holy Rosary Catholic Church, Tesobar, Lira City, in partnership with @Lira_RRH and with support from the Consortium on Newborn Screening for Sickle Cell Disease in Africa.

📊 Outreach Results:
✅ Total tested: 382
🟢 AA: 271
🟡 AS: 105
🔴 SS: 6
📌 Referrals made: 23

The referred individuals are expected at Lira Regional Referral Hospital tomorrow for further medical assessment and confirmatory testing.

We remain committed to raising awareness, promoting early diagnosis, and improving care for individuals and families affected by sickle cell disease.

#SickleCellAwareness #SickleCellDisease #NewbornScreening #LiraCity #HealthForAll #CatherinePhilSSI #ConsortiumNBSAfrica

@HemOnc_Uganda @SueNsibirwa
@Lira_RRH @ASH_hematology @Rakugizibwe2 @BalaamBarugahar @jcrc_official1 @SickleCellWI @AfricaCDC @LUPHSAlirauni @agrosupplyug @burundi_30 @IBloodDisorders @olaro_charles @DianaAtwine @ManziSicklecell @CHRISBARYOMUNS1 @JanetMuseveni @DaudiKabanda @kcbbankug @dgrotaryd9213 @qcil_uganda2 @MinofHealthUG @thehemophiliaph

[Daniel Roy O'dur 🧢 @ddanielroy]

Service to humanity

#KnowYourStatus #PublicHealth #LeaveNoOneBehind #SickleCellAwareness #CAPSCI

[Catherine Phil Sickle Cell Support Initiative @UgandaSickle]

Happening Now 📍

A joint community outreach with @Lira_RRH at St. Peter Claver Ober Catholic Parish in Lira City.
The Consortium on Newborn Screening in Africa (CONSA) is committed to ensuring that newborns are screened for sickle cell trait and disease, while also strengthening community referral systems through community-driven solutions led by community health workers.

@KarisMedical @Climate_Allies @DailyMonitor @kcbbankug @qcil_uganda2 @Microhaem @SickleCellWI @upfm_malaria @SabrinaKitaka @Emmanuel_Rotary @HemOnc_Uganda @SusanNabadda @cphluganda @OoasWaho @pridebankltd @WHOUganda @pagthals @IpasOrg @ADEAJOSHUA23 @burundi_30 @AfricaCDC @pearlbank_ug @mrs_tunjiajayi @IBloodDisorders

[Daniel Roy O'dur 🧢 @ddanielroy]

A defining chapter has been written in Uganda’s public health journey

[Catherine Phil Sickle Cell Support Initiative @UgandaSickle]

The Permanent Secretary of the @MinofHealthUG, @DianaAtwine, has officially launched the Hydroxyurea manufacturing plant and Sikurea Hydroxyurea 500mg by Quality Chemical Industries Limited (QCIL) in Luzira — a landmark milestone in Uganda’s fight against Sickle Cell Disease (SCD).
Dr Atwine emphasized that SCD contributes to nearly 20% of infant mortality in Uganda, underscoring the urgent need for sustainable access to life-saving treatment and early interventions. She reaffirmed Government’s unwavering commitment to combating Sickle Cell Disease through strengthened local pharmaceutical manufacturing, improved access to treatment, and strategic partnerships with the private sector.
The Government of Uganda will continue to work closely with @qcil_uganda2 to ensure the availability and affordability of critical sickle cell therapies, including Hydroxyurea, for patients across the country. The Permanent Secretary further noted that all sickle cell commodities will be integrated among Uganda’s essential medicines, reinforcing Government’s commitment to equitable access and long-term care for affected communities.
Dr Atwine also called upon the public to embrace premarital genetic counseling and support nationwide newborn screening initiatives aimed at early diagnosis and intervention. She commended the ongoing support from the Consortium on Newborn Screening for Sickle Cell Disease in Africa (CONSA), whose partnership continues to strengthen Uganda’s efforts in reducing the burden of the disease.

Today’s launch represents a major step forward in advancing local solutions, improving patient outcomes, and building a healthier future for Uganda.

@ASH_hematology
@DailyMonitor
@jcrc_official1 @Emmanuel_Rotary @Microhaem @MugenyiHenry_ @pearlbank_ug @KagutaMuseveni @ainbyoo @ubtsug1

[Catherine Phil Sickle Cell Support Initiative @UgandaSickle]

Happening Now:
The official launch of the Hydroxyurea manufacturing plant and Sikurea Hydroxyurea 500mg by @qcil_uganda2.
This marks a major milestone for the sickle cell community in Uganda and beyond — a dream becoming reality for thousands of patients and families. We are hopeful that this initiative will significantly improve access, affordability, and availability of Hydroxyurea treatment across Uganda.
A commendable step forward in strengthening local pharmaceutical manufacturing and advancing healthcare outcomes for people living with sickle cell disease. 🇺🇬👏

@DailyMonitor @PSIUganda
@ASH_hematology @HemOnc_Uganda
@jcrc_official1 @ubtsug1 @DianaAtwine @Zahranamuli
@Microhaem @NicosamHealth
@kcbbankug @JollyAtwine
@MinofHealthUG
@MugenyiHenry_ @SueNsibirwa
@BOU_Official. @agrosupplyug

#SickleCellAwareness #HealthcareInnovation #Pharmaceuticals #Uganda #AccessToMedicine #LocalManufacturing

[Catherine Phil Sickle Cell Support Initiative @UgandaSickle]

UHURU SICKLE CELL RUN 2026
03RD.OCTOBER.2026-LIRA CITY

THEME: "Run for Life. Run for Hope. Run Against Sickle Cell".

Join us in championing a cause that saves lives and inspires futures. Your support for this impactful initiative helps drive awareness, advocacy, and meaningful change in the fight against sickle cell disease.

To partner with or support this noble cause, please contact us at:
Email: [email protected]
Tel: [phone]
https://t.co/A2cUbt6hUe
@jcrc_official1 @qcil_uganda2 @RoofingsGroupUG @RupareliaFund @Microhaem @pearlbank_ug @PepsiUganda @Toyota_UG @SpearMotors @pridebankltd @BOU_Official @UBL_Batteries @MinofHealthUG @AbacusPharmaLtd @StanChartKE @kcbbankug @RctNajjeera @LEMU_Uganda @sylmulinge @mtnfoundationug @stanbicug @ASH_hematology @DailyMonitor @DeoKigozi1 @MugenyiHenry_ @NBSportUg @AzawiOfficial @andykristian @KarisMedical. @AzawiOfficial @TusiimeSheila @agrosupplyug @UhuruInstitute

[Daniel Roy O'dur 🧢 @ddanielroy]

This signature represents my unwavering commitment to a united Africa — one roof, one vision, and stronger harmonized policies that drive coordinated action in the fight against Sickle Cell Disease across the continent.
@WHOUganda @JohnsHopkins @bayloruganda @bmsnews @AfricaCDC

[Catherine Phil Sickle Cell Support Initiative @UgandaSickle]

FINAL DAY | @spekeresort
The official launch of the Africa CDC Continental Plan for Sickle Cell Disease and Other Inherited Blood Disorders marked a significant milestone in advancing equitable healthcare across the continent.

Ms. Catherine Grimes, President of @bmsnews, and Dr. Cristian Massacesi;Executive Vice President has emphasized the urgent need for strengthened capacity building through the training of healthcare workers and the integration of sickle cell disease services into primary healthcare systems to ensure accessible, comprehensive, and sustainable care for affected communities.

@MinofHealthUG @AfricaCDC @DianaAtwine @JaneRuth_Aceng @bayloruganda @novonordiskfond @bayloruganda @ASH_hematology @jcrc_official1 @TexasChildrens

[Daniel Roy O'dur 🧢 @ddanielroy]

Celebrating progress, combating Sickle Cell Disease...
Africa gathered under one roof to design and approve a continental Plan aimed at a coordinated, equity-driven and sustainable response in Africa
@MinofHealthUG @EnockArts @DianaAtwine @AfricaCDC @AUC_PAPS

[Catherine Phil Sickle Cell Support Initiative @UgandaSickle]

Happening Now | Advancing Africa’s Continental Response to Sickle Cell Disease

At the ongoing discussions on the Continental Plan for Sickle Cell Disease, stakeholders are championing an equality-driven and sustainable response across Africa.

Dr. Mohammed AbdulAziz, Head of the Non-Communicable Diseases, Injuries and Mental Health Division at @AfricaCDC, has called upon Member States and partners to strengthen political commitment towards combating Sickle Cell Disease through:

• Improved access to essential commodities and healthcare services
• Workforce development and capacity strengthening
• Country ownership and accountability
• Enhanced coordination among stakeholders and partners

This collective commitment is critical to building resilient health systems and ensuring no one affected by Sickle Cell Disease is left behind.

#SickleCellDisease #AfricaCDC #HealthEquity #NCDs #PublicHealth #LeaveNoOneBehind #CAPSCI

@novonordiskfond @TexasChildrens @bmsnews @bayloruganda @MinofHealthUG @DianaAtwine @olaro_charles @ASH_hematology @jcrc_official1 @DailyMonitor

[Daniel Roy O'dur 🧢 @ddanielroy]

Happy Birthday, Ladit @mkainerugaba.
Kukwifuriza obuheesi oburungi
@DaudiKabanda @MwesigyeFranks @Plumedia1 @Plugandaa @PLU_UKChapter @PLU_westnile @nyamadon @DavidMafabi5 @AnitahAmong @NRMOnline @MichealMawanda1

[Catherine Phil Sickle Cell Support Initiative @UgandaSickle]

Happening Today
Sickle Cell Disease Awareness Symposium 2026 at @GoldenTulipKla Proudly organized by @JCRCofficial and sponsored by @terumobct, under the Theme " Transfusion modalities in sickle cell disease management with a focus on apheresis red blood cell exchange transfusion.

@MugenyiHenry_ @JollyAtwine @DailyMonitor @kofihuganda @pearlbank_ug @Microhaem @MinofHealthUG @DianaAtwine @olaro_charles @UNOC_UG @SabrinaKitaka

[Emma Official @AwanyEmmanuel4]

From @duke_gwengburg

[Catherine Phil Sickle Cell Support Initiative @UgandaSickle]

SICKLE CELL AWARENESS & SCREENING — HAPPENING NOW

At Good Samaritan Nurse Training School, a life-saving movement is underway.

Sickle cell disease continues to affect thousands of families—but early testing can change everything

Why this matters:
School-based testing empowers young people to know their status early, make informed life choices, and prevent future suffering.
Newborn screening gives babies a fighting chance ,early diagnosis means early care, better health, and longer lives.
Genetic counseling equips families with critical knowledge to break the cycle.

Today’s outreach includes:
* Sickle cell awareness education
* Free screening and testing
* Professional genetic counseling

Catherine Phil Sickle Cell Support Initiative, together with its dedicated partners, is taking bold action to combat sickle cell across the country one test, one life, one future at a time.

Know your status. Protect your future. Save lives.
@MicrohaemScientifics @minds_cari81547 @MinofHealthUG @maryhillalumni @MugenyiHenry_ @DailyMonitor @sicklecell101 @JollyAtwine @Zahranamuli @TugumeNelsonO @olaro_charles @DianaAtwine @JaneRuth_Aceng @pearlbank_ug @DailyMonitor @UNOC_UG @pridebankltd @dfcugroup @CompassionInUG @Snduhukire

[CivSource Africa @CivsourceAfrica]

Who is the grandmother your family should never forget? 💛 Share her story through #GoGrandma in your own language and voice.
���� Photo and caption
🎙️ Voice note
🎥 Short video
Tag 1–3 people to keep it going.
📧 [email protected]om
#GoGrandma

[Daniel Roy O'dur 🧢 @ddanielroy]

Let's learn together ❤️

[Catherine Phil Sickle Cell Support Initiative @UgandaSickle]

❄️ COLD&HOT WEATHER ADVISORY FOR SICKLE CELL WARRIORS & CAREGIVERS ❤️

Cold weather can trigger pain crises and other complications for people living with sickle cell disease. Let’s take extra precautions during this season.

🧥 Dress warmly in layers
🧤 Wear hats, gloves, and warm socks
☔ Avoid getting wet and stay out of cold winds
😴 Get enough rest
💊 Take your medications as prescribed

Your health is important. Stay warm, stay safe, and don’t hesitate to seek medical care if you feel unwell.

For support or more information:
📞 0392150047
📧 [email protected]
🌍 https://t.co/Srf88RXKzc

#SickleCellAwareness #CAPSCI #StayWarm #LeaveNoOneBehind

@DailyMonitor @maryhillalumni @SabrinaKitaka @TexasChildrens
@ASH_hematology @brian_mutono31 @BOU_Official @SafariUbuntu @RotaractClubVU @RCKla7Hills @RotaryClubofSu2 @rctmusical @rctlakevictoria @RACTankhill @kviolet01 @dokolopost @Pearlbankug
@KateregaUthman @kcbbankug @stanbicug @UNOC_UG @LugogoMangoTree @kyanjarotaract @najjerarotary @RotaryMedia256 @ISACAKampala @rkalyes1 @RctWakiso @olaro_charles @cpmayiga @Educ_SportsUg @MakCHS_SOM @NsambyaHSchool @BuddingJunior @MakSPH @Lung_Institute @VoiceF16388 @943qfmlira @globalscdorgs

[Catherine Phil Sickle Cell Support Initiative @UgandaSickle]

❤️ LEAVING NO ONE BEHIND!

In Uganda, 1 in 5 people carries the sickle cell trait*, yet many do not know their status. This means thousands of children are born every year with Sickle Cell Disease, a condition that can be prevented through awareness and testing.

🩸 Know Your Sickle Cell Status.
🧬 Test before marriage or having children.
👶 Protect the next generation.

At Catherine Phil Sickle Cell Support Initiative (CAPSCI), we are committed to supporting patients, educating communities, and ensuring that *no one is left behind

📍 Kulambiro–Najjera Rd, Kampala
Plot 1628, Block 215 – 2nd Floor, Yodev Plaza (Lira City)

🌐 https://t.co/Srf88RXKzc
📧 [email protected]
☎️ 0392150047
📱 WhatsApp: [phone]

🙏 Share this message. Talk to your family. Test today. Save a life tomorrow.

#KnowYourStatus #StopSickleCellUG #CAPSCI #LeaveNoOneBehind #SickleCellAwareness

@NutritionistsUg @guguddetvuganda @NutritionistKD @laalanydaniel @MulagoReferral @NaCORIUganda @DrJGiddensRN @SCCConsortium @MugenyiHenry_ @MwesigyeWalter @DianaAtwine @PSIUganda @stanbicug @JanetMuseveni @luonation101 @aaronebwola @AshabaMusic @ASH_hematology

[Parliament of Uganda @Parliament_Ug]

House has adopted the motion urging government to recognise the sickle cell disease as a major public health concern that requires immediate budgetary attention.

Government Chief Whip, hon. @ObuaHamson said the issue of sickle cell disease is being integrated within the national health system by @MinofHealthUG.

“We are trying our best to ensure the availability of essential medicine. We are also encouraging public-private partnerships to complement efforts of government in sensitising communities about this monster,” he said. #PlenaryUg

[Catherine Phil Sickle Cell Support Initiative @UgandaSickle]

PRESS RELEASE.
We thank @Parliament_Ug for adopting the motion urging government to recognise Sickle Cell Disease as a major public health concern that requires immediate budgetary attention.

@ObuaHamson @AnitahAmong @DrAyumeCharles @MugenyiHenry_ @PimerBeatrice @kviolet01 @kcbbankug @BuddingJunior @lemuga @DailyMonitor @stanbicug @SabrinaKitaka @roxie_ug @KagutaMuseveni @DukeSanford @NovartisMedical @newvisionwire @GCICUganda @GovUganda @UNOC_UG @MinofHealthUG @RotaractNdejje @rctlakevictoria @RCTankhill @TheNCSCC @SickleClinician @Aghogho_SS_Fd @ACCESS_UG @SueNsibirwa @SCMentorship @OfSicklers @SickleCellUK @KiberuSirajje1 @MwesigyeWalter @TexasChildrens @kyamageroandrew @MoICT_Ug @nmsuganda @KagutaMuseveni @unhco @NutritionistsUg @eancdalliance @SickleInAfrica @DianaAtwine @cphluganda @guguddetvuganda

[Catherine Phil Sickle Cell Support Initiative @UgandaSickle]

KNOW YOUR SICKLE CELL STATUS THIS VALENTINE’S DAY...

Flowers fade... but knowledge lasts. Test for sickle cell this Valentine’s Day, at all the regional centers for excellence across the country and selected private health facilities.
Leave No On One Behind!

#knowyoursicklecellstatus
@isupportsicklec
@MinofHealthUG @DianaAtwine @MugenyiHenry_ @idringp @mssicklecell @ogingojoy @SickKidsNews @TexasChildrens @hemophiliafed @PatroUganda @DailyMonitor @PAU_Uganda @UNOC_UG @guguddetvuganda @mildredtuhaise @Mildred_Pedun @Sudhirntv @LindaEvelyn_N @Zahranamuli @ConquerSCD @cphluganda @mssicklecell @SickleCellUK @nextradio_ug @97fmRadiocity @RadioOneFM90 @977unityfm @dgrotaryd9213
@SueNsibirwa @kviolet01 @Kigo7LakesGolf @rckira1 @RotaryBerkeley @d9212_ @roxie_ug @BebeCoolUG @JKanyomozi